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Autism or something else…

The Beginning: Motherhood, Hope, and Early Signs

Intro:
Every family has a beginning, a moment when life feels simple and full of possibility. For me, motherhood started with joy, certainty, and a sense of purpose I had never known before. I didn’t know then how profoundly my life would change — or how much strength I would need to find along the way.

My Story Begins

Before the uncertainty and before the long nights searching for answers. I am a mother of three:

  • a bright young man, now 19, thriving in college despite ADHD,
  • a son with severe autism who needs substantial support,
  • and my youngest, a daughter who was born during one of the hardest seasons of my life.

Before motherhood, I was young, independent, and building a career in Brazil. I met my husband during a phase of self‑discovery — no longer a college student living with my mom, but a young woman carving out her place in the financial car‑dealership industry. When I chose to start a family, everything shifted. My sense of purpose began to point somewhere else. I left my country and my career to follow my husband to the UK. Some said I was making a mistake; others said I should follow my heart. The truth is, I did it with certainty — and with joy. Becoming a mother became the happiest, most fulfilling chapter of my life.

Early Signs

My first son was curious and full of potential. He didn’t speak until he was four, but doctors reassured us he was simply developing in his own time. However, years later, at age eleven, he was diagnosed with ADHD — Fortunately, his level of ADHD was mild to moderate, limiting his symptoms to some hyperactivity and challenges organizing tasks.

My second son followed a similar early pattern with speech, but his challenges ran deeper. Not from the beginning, but gradually, becoming more noticeable with time. By primary school, he was diagnosed with autism spectrum disorder. The UK does not label levels of autism, offering support equally to every child, but using the U.S. framework of Levels 1, 2, and 3, I believe he fell somewhere in Level 2.

Our daughter was born during a calm period in his development — a gentle presence in the middle of an uncertain future for our family. Caring for a newborn gave me brief moments of distraction, a breath of fresh air in the midst of everything we were facing.

When Everything Changed — The Shift No One Could Explain

The Shift No One Could Explain

Intro:
Some moments divide life into “before” and “after.” For us, the shift was sudden, frightening, and overwhelming. It was the moment when everything we thought we understood about autism no longer made sense. It no longer had a pattern, it was no longer predictable, it was no longer manageable.

When Everything Changed

While I was learning how autism would shape our family, my middle child began to change in ways that didn’t match anything we had been told to expect.
He developed night terrors, panic attacks, sensory overwhelm, bedwetting, and behaviors that made him look like a completely different child.

A private consultant — an ABA specialist — whom we hired and paid out of pocket, as the NHS doesn’t offer that kind of support, worked with Nick for only a couple of months before looking at me and saying something that changed everything:

“This is not autism alone. I have worked with hundreds of children and although every child with Autism is different, they have their own pattern, and the child I am seeing today is not the child I started to work with, or the child you described he used to be a few months ago.”

Hearing those words terrified me. But it brought me a flick of hope. If it is not autism that change him so radically, so it can be reversed!? I wanted answers.